Enerca is a network of professionals, research centers and hospitals that are committed to working together to discover the origin, evolution and cure of rare anemias.  Recently, Enerca dedicated a portion of one of their pages to our website.  In doing so, our website has been made visible to specialists throughout Europe.

Thank you!!!

A couple of months ago a woman from North Attleboro, Massachusetts (USA) contacted us to tell us that she had seen our web page and that she had loved it. It turns out that she is also afflicted with PDK and had found us on Facebook. She loved the site so much that she asked us if we were planning on translating it into English. We had to tell her that, regrettably, we were unable to translate such technical topics, as they are even difficult to explain in our own language.

A couple of days later, the woman let us know that she was going to try to contact a language teacher from the high school in her town to see if anybody would help to translate the site. It seemed like a great idea to us, an example of solidarity and good faith. To our surprise, a couple of weeks later, we received an email from Anne Marie McGrail, a Spanish teacher from North Attleboro High School. She told us that she and her students would be happy to translate the site. She told us that it would be a great learning opportunity for her students, and she added that her students had been very excited about the opportunity to help such a worthy cause.

Soon after, the translations arrived and not just for the main pages but also for each and every one of the blogs. And if this weren’t wonderful enough, the students and their teacher promised to translate all of the future articles that we wanted to add to the site.

What do you think? It has shown us that there are wonderful people in this world with great hearts and a sincere desire to help others. So from Barcelona, Spain we want to thank the anonymous individual who put us into contact with our translators. We also want to thank Ms. McGrail and all of the North Attleboro High School students that participated in translating our page. THANK YOU!

We, as ambassadors, have the fortune of forming part of this great family. Bernat’s health has improved greatly, and he has enjoyed everything that has been done for him. The marathon began with hundreds of red balloons being released into the sky.

We would like to thank all of the people that made this special day possible; there were as many donors as there were recipients, organizers, volunteers, and authorities present at the event. Luckily, there was a ton. But we don’t want to forget anyone! Because of this, we can only give love and thanks from our hearts to each and every person who attended. We encourage people who are considering donating blood to do so in the future to help this beautiful and unique cause.

The interview, hosted by Núria Solé and Cristina Macías, lasted about 20 minutes. Together with Enric Contreras (Coordinator of the Central Territories Blood and Tissue Bank), we were able to speak a little bit about Bernat and the history of his illness. Most importantly we were able to discuss the importance of the Blood Donation Marathon, the excellent work of the Blood and Tissue Bank, and to give a message of gratitude to all of those who donate blood.

Many thanks to Núria y Cristina for the opportunity given to us and for the fantastic broadcasting of the cause.

For this reason, Bernat has participated in the emotional campaign “The Fate of Donating Blood” (the featured video) made by our friends at the Blood and Tissue Bank of Catalonia.

Like other occasions, Bernat is going to be at the event. He will be there to show how important it is to receive frequent blood transfusions. We would be very happy if we could make more people aware of the importance of blood donations.

Click here to read the entire article.

The program, led by Sílvia Tarragona, is a benchmark for journalism in our country, that stresses the need to donate blood, especially in times when blood donations are somewhat limited. At the same time, they showed interest in Bernat’s illness, family, and other children in similar situations.

We would like to thank Sílvia Tarragona, for her excellent program and personality, as well as Doctor Lluís Puig, for his assistance. Last but not least, we would like to thank Sergi Bassolas for giving us this opportunity with his amazing report.

Many choral groups participated in the Solidarity Concert, including Espai 6-12, Xemeneia Amunt, and the Coral al Sagraer (the student chorus from Bernat’s school). During the second half of the concert, they gave a small speech about Bernat and his illness, to encourage people to donate blood in order to help children like Bernat. It was a nice gesture by Aitor’s parents and the organizers of the event. We would like to thank all of the people that made it possible for us to be included in the precious Solidarity Concert, especially Luz Marina.

Thank you very much!

The report informed people about Bernat and his disease of Pyruvate Kinase deficiency, and it also highlighted the importance of having plenty of donors to help those in need, especially in the holiday season when donations usually aren’t as frequent.