It’s been a long time since we’ve published anything on our blog. But today we had to! We needed to share our joy with all of you! We’ve been added to the website Enerca, the European Network for Rare and Congenital Anemias. Enerca is a network of professionals, research centers and hospitals that are committed […]
Thanks to the creation of this website, elPetitBernat.com, we have been able to disseminate clear and comprehensive information about Bernat’s illness. It’s clear that Bernat is the protagonist of our page, but we have also been able to use the site to inform many people about the importance of donating blood, being a marrow donor […]
Recently, elpetitbernat has been made available in English. This means that all of the information about Pyruvate Kinase Deficiency and about little Bernat is available to many more people on the planet. But don’t think we did this ourselves! It was a marvelous act of support carried out by strangers. And today, of course, we […]
The 2016 Blood Donation Marathon began today, which addressed the importance of donating blood. Yesterday we had the privilege of being guests on the famous Catalonian television program, Els Matins. The interview, hosted by Núria Solé and Cristina Macías, lasted about 20 minutes. Together with Enric Contreras (Coordinator of the Central Territories Blood and Tissue […]
This past Wednesday (the 18th), BTV news (Barcelona Television) gave a small report on Bernat and the Blood Bank to highlight the importance of donating blood, as well as to share Bernat’s goal of reaching 1,000 new donations by Christmas. The report informed people about Bernat and his disease of Pyruvate Kinase deficiency, and it […]
Apart from chronic transfusions, Bernat should continue periodic checks regarding possible changes that could cause sickness and more transfusions. For example, at the end of July, we mentioned an MRI, but since then, he has needed other check ups done on the heart, the liver, the sight, and the hearing. This is all because of […]
Last week, Barcelona was ready for a party. “La Merce” festival gave life to the city with all kinds of activities and events. Among these events, we attended the 20th anniversary ceremony of the Association of Barcelona in the Plaza Cataluña and surrounding areas. There, all kinds of associations and federations from the social field […]
Last weekend, Bernat had a visit with the Neurological Team of the Sant Joan de Déu Hospital. They had him marked for a strict follow-up due to the psychomotor delay that caused the creation of the Pyruvate Kinase Deficiency Disease. The great difficulty in the transport of oxygen and a massive destruction of Red Blood […]
Yesterday, Bernat received a new blood transfusion. The fiftieth one, including all the blood transfusions he has had in the past three years. He is always brave, and in the photo one can see that he is calm and happy. We want to take this time to thank the hematologists of San Joan de Déu […]
Today is a special day, it’s the day that we open the new website called El Petit Bernat (Little Bernat), a site dedicated to Bernat and his illness: Pyruvate Kinase Deficiency. With this site, Bernat’s parents want to make this disease known to people, so everyone can understand the little things that they can do […]
