Last Thursday, February 4th, while Bernat was receiving his transfusion, we had a lovely visit from somebody special. It was Salvador Tejero, one of the most senior and beloved volunteers at the Sant Joan de Déu Hospital. It had been several months since we had last seen him. We thought that maybe they had changed […]
Lately, we have not discussed the blood transfusions that Bernat has been receiving in our blog. Although there have been many ups and downs, some weeks are more difficult than others. But at this time, we have decided to announce something: one of the hematologists helping Bernat has become famous! Ruben, who has been with […]
This past Saturday, on the radio program Friends and Acquaintances, Bernat and a Pyruvate Kinase Deficit were the protagonists of a fantastic report carried out by Sergi Bassolas. During the ten minute program, the listeners learned about Bernat’s history, his ailment, and the importance of donating blood for those in need. We want to thank […]
Apart from chronic transfusions, Bernat should continue periodic checks regarding possible changes that could cause sickness and more transfusions. For example, at the end of July, we mentioned an MRI, but since then, he has needed other check ups done on the heart, the liver, the sight, and the hearing. This is all because of […]
Last Tuesday the 29th Bernat received another blood transfusion. Even as his parents it’s hard to know exactly how he is actually feeling. He had been tired for a few days but as usual he was still eager to do everything. In fact, even when he first arrived at the hospital he kept talking and […]
This Saturday, September 26th, in the Gardens of Palau Robert, the 5th Festival of Hospital Sant Joan de Déu will be held. This year it is called the Festa dels Petits Valents (Festival of the Little Brave People), in order to pay homage to the patients of the hospital. Just like in the past, it […]
On June 11th, Bernat received another blood transfusion in San Joan de Déu Hospital. As explained above, upon arrival he underwent a blood test in order to determine his levels of red blood cells. During this visit with the doctor, we were informed that this time his red blood cell levels were lower than usual. […]
Last Tuesday, May 19th, Bernat visited the hospital to receive another blood transfusion. Since we visit the hospital every three weeks, we want to tell you what happens during these special treatments. Today, we would like to explain what these visits consist of, and what to expect. Today it started at home, when at first […]
Last weekend, Bernat had a visit with the Neurological Team of the Sant Joan de Déu Hospital. They had him marked for a strict follow-up due to the psychomotor delay that caused the creation of the Pyruvate Kinase Deficiency Disease. The great difficulty in the transport of oxygen and a massive destruction of Red Blood […]
Yesterday, Bernat received a new blood transfusion. The fiftieth one, including all the blood transfusions he has had in the past three years. He is always brave, and in the photo one can see that he is calm and happy. We want to take this time to thank the hematologists of San Joan de Déu […]
